Tuesday, March 22, 2011

Skin problems

HELP!!

I know some of you with IA kids have had to deal with some odd skin disorders.  We're going through that with Sam, now, too.  I'm posting some pics below, hoping you've seen this before and can tell me what it is.  Any and all input is appreciated.

From the time we brought Sammy home, he'd get these bumps that look exactly like large mosquito bites.  He'd scratch them, they'd scab, then heal, leaving a scar.  In the beginning (the first 2-3 times this happened), there were only two or three bumps.  Honestly, we assumed they were mosquito bites at first.  Then winter came.  No mosquitos.  Yet, he still broke out.  He breaks out every 4-5 months, or so.  Each time it happens, it gets a little worse.  Now, instead of a few bumps, he's covered.  The break-outs don't last long.  Only a few days.

We just had a large batch of bumps show up on Thursday morning.  Sam was miserable.  Scratching, crying...  It's awful.  I took him to the Ped. on Friday morning (it was the soonest they could see him).  She has no idea what it is.  One of her partners suggested flea bites, which almost made me foam at the mouth and run, cursing, down their hallway.  I might be an idiot, but don't insult my intelligence.  I think I'd know if my home was so infested with fleas that my baby is being eaten alive.  If fleas were that bad in our house, why would the bumps heal after a few days?  Wouldn't the sores be constant?  Do fleas take breaks?  And why wouldn't the rest of the family get bitten, as well?  Stupid. 

Anyway...  The Ped. scheduled him to see a specialist at Children's Mercy, to get some samples of it, but Chilren's Mercy couldn't see him until tomorrow (Wed, 24th).  His bumps were almost completely gone yesterday (Mon, 21st), leaving only a red spot, like a scar, where the bumps were.  He still has a couple scabs left, too, from the ones he picked at.  So, the Dr. said to cancel the appt. at CMH, since they'd have nothing to test.

I cancelled, but I'm left feeling so frustrated.  How can I help him, if the outbreaks are so short, that they heal before the specialist can see them?  (Another local dermatologist wasn't even willing to look at him until August.  AUGUST!  How can I predict whether or not he'll have it in August?)

I sent a message to a doctor in the RMI who was a great help to us while we were there, asking if she knows of anything that may be unique to the Marshall Islands, like a parasite, or something, that I could tell my doctor here about.  Unfortunately, I think there may have been a bit of a communication barrier, because she apparently thought I was wanting her to diagnose him, without seeing him.  So...  That was a bust.

Here's what they look like. These photos were taken Friday, after his Dr.'s appt.  With this recent outbreak, he had some large patches of little bumps, instead of just sparse, large, red bumps, as well as some on his fingers, which has never happened before.


Torso

 Elbow


 Side







If you recognize this, or have any ideas, I'd be grateful!

5 comments:

metaphase said...

Poor baby. Whatever it is, it looks uncomfortable! Did you contact Laurie? (pho for how ever many now)She did a study on acropustulosis and it included lots of us. Those bumps on his hands/elbows remind me of that. I think she's your best bet to at least be able to mention something to your Dr.

Nicki said...

I was going to guess acropustulosis as well. Especially with the weird recurrence pattern. Laurie would be a great person to ask, I agree. If you don't have her contact info, let me know privately.

Tracy said...

I was going to suggest Laurie, too. Her blog is www.goodhappenings.com.

Poor guy!

Karin said...

So funny! I was posting to say send the pictures to Dr. Laurie. I hope Sam feels better soon, that looks so uncomfortable. :(

Lina said...

Yikes - did you figure out what this is? I was thinking of Laurie too. Poor baby. Looks miserable.